The EHCP Battle Finally Won!!

When you have 2 children on the spectrum who have an EHCP you presume when your 3rd is diagnosed an ECHP will follow and he will be entitled to the same support as his siblings have been lucky enough to have. Sadly for us, this wasn't the case! Its been 6 years since DJ was diagnosed with Aspergers, I had already mentioned to his primary school prior to diagnosis that I wanted to go ahead with an EHCP. I was told by then that without a diagnosis that wasn't going to happen and just to wait. I have since found out that this is lies, you DO NOT need a diagnosis to gain an EHCP. I have also since found out that you can infact pursue an EHCP yourself and not wait for the school to apply for one. 

When he was diagnosed I approached the school Senco again, I was yet again told with a diagnosis of Aspergers he was unlikely to get an EHCP as he didn't require the appropriate amount of support. I called BS on this at this point Dj was 2 years behind educationally. It was a constant battle to get him support even with a diagnosis if you couple that with a child who is reluctant when it comes to school, you spell disaster. He struggled so much he hated school, felt like he didn't fit it, struggled with the work, the lack of in-class support saw him slip further behind.  

His SAT'S gave him major anxiety and school were NO help as he didn't have an EHCP so he wasn't entitled to any support!! Vicious circle, no EHCP, no support and yet they tell me he didn't need enough support to warrant an EHCP.....
I took the decision in the last term of year 6 to remove him from education, it was becoming damaging to his mental health being there in that type of environment where he was left floundering.

His start of high school was a turning point for him, even without an EHCP he was getting fantastic support from the resource provision that had staff that not only understood him but helped him. Their Sendco started his application for an EHCP and we waited. Unfortunately for him in the time we applied there was a change of SENDCO, his school was closed down and he had to change schools, all of these factors hindered the progress of his paperwork. 

During our very first lockdown in March, I had a lot of telephone conversations with lots of professionals. Then the magic moment finally came and I received an email with a copy of his draft EHCP!! He had awarded full support and a long list of support requirements for his new school to follow.

His EHCP has now been on effect for 4 months and although still a reluctant leaner he is making good progress in school. He started off spending all his time in the resource provision for all lessons, he is now attending some mainstream classes and coping well.

With us now in lockdown 3.0 I am more than grateful for his EHCP as it means he is allowed to attending school though lockdown. It is very much needed for him as he is playing catch up already. 

If pushing for an EHCP has taught me one thing it has to be don't give up. Keep on pushing for what you believe your child needs and deserves, it been a long 5 years coming and I am so glad it's over. As a special needs parent, I am fully aware that there could be another battle for something else just around the corner! But for now, I am just enjoying the peace!
Thanks for Reading
Mandy
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